I am feeling well again and am enjoying being back at home, feeling the spring rush of energy. I’ve spent the past two weeks designing a dress and it is FABULOUS. Amazingly kitchy, in our favorite ghetto sweetheart, Red Heart yarn from the box store, it has a corset fit around the breasts and midriff with a lace up back, and it ties around the neck. The lacings make it a one size fits most, especially the way crochet stretches and grows. I had to crochet and rip out sections over and over, but it was worth it. I’m starting another so that I can write the design down in hopes of publishing it, and I’ve posted it up on Etsy, in the hope that I can get some custom orders out of it.
It would be wonderful to be able to make a living out of my arting and crafting–this illness would be a blessing in disguise if it’s what finally
motivates me to take my work seriously. And I hate working for bosses, doing hard labor for shit pay year in and year out, and never getting anywhere for it.
In other news, I started on a trial of Doxycycline, using my body as an experimental battleground to see whether my symptoms are being caused by Lyme disease. At first, I thought my urologist was way out there for suggesting it, but the more research I do, the more the puzzle seems to point in that direction. It’s too early to tell whether the anti-biotics are working, and I’m trying not to get my hopes up. Every time I have a good spell, I start to pick up my life again where I’ve left it off, and then everytime I get sick again, it’s just as devastating as the first time. I need to learn how to be grateful for each day that is good, and stay strong when things are tough, but it’s hard to find a balance between positive thinking and reality sometimes. I know that this is all making me a better and stronger person spiritually, but I don’t think that way when I’m hurting, I just wish that it wasn’t me being presented with another f—ing growth opportunity!


hiddenlives said,
March 12, 2010 at 8:51 pm
I love your creative spirit (and the dress, too.) If I had not been pushed to get on an artist’s path about a year before I got sick, I’d have lost my mind.
You made me grin with “I just wish that it wasn’t me being presented with another f—ing growth opportunity!” hehehe…I used to bug my brother every time he complained by telling him it “built character” until one day he said “I’ve got so much f*(&(*^ character I don’t NEED anymore!”
Thanks for the view of your work and for the smile. Best of luck on your anti-biotic trial!
betuladesigns said,
March 17, 2010 at 3:19 am
thanks for the encouragement! some days i just need to curse and spit to keep my chin up! I love your blog–it is always really inspiring to me to read and hear about others who are struggling with chronic illness that isn’t necessarily visible on the outside–requiring so much justification of our self-care strategies, and countless explanations that i often don’t have the energy to give. You’re awesome!